Rare Diseases Greece presents three groundbreaking, interactive tools that offer valuable support to individuals living with rare diseases in Greece. These tools aim to improve access to therapies, advocate for patient rights, and enhance understanding of the rare disease landscape in the country.
- The Access Guide to Rare Diseases and Orphan Drugs provides clear information on the approval and reimbursement process, serving as a reliable compass for patients navigating the healthcare system.
- The Guide to Patient Rights and Social Benefits thoroughly compiles available services, institutional rights, and all essential information relevant to patients and their families.
- The Greek Rare Disease Map is an interactive tool that allows users to search for information on more than 500 documented rare diseases in Greece, as well as locate Centers of Expertise and specialized Units and Outpatient Clinics across the country.
These tools promote transparency and empower citizens to actively participate in the management of their health and care.
More information is available on the official website of Rare Diseases Greece: rarediseasesgreece.gr